Wednesday 1 June 2011

Day 5

So far since being inoculated with the hookworms, nothing eventful has really happened. The infection site on my arm is still red, though no longer inflamed, just kind of bruised looking.  As time  has past, it has been getting progressively less itchy and the red spots went from being spots to actually being little raised bumps. It’s hard to believe that something so tiny left such big marks.
I think I’ve been experiencing some sort of honeymoon phase. Last week I was feeling on the verge of flaring and since then I’ve had a remarkable reversal of symptoms. Even my arthritis has been very mild. Also the abscess I had resolved on its own.  From what I hear from other people’s experiences with abscesses, I’m very lucky; through it’s probably more related to the Remicade then the worms. I spoke with my specialist yesterday and he is changing my Remicade back to 8 week intervals again. Hopefully the next time I see him in August, three months from now, we can extend that even longer. I have no idea yet how to taper off the medications, but I’m so excited to do it.
I love my GI specialist. He’s in Toronto, but I gladly make the two hour commute to see him. He is the third specialist I’ve had and by far the most caring and competent I’ve seen. He remembers me each time I visit and even small details of my history. When I see him I’m almost star struck or dazzled because to me, he’s my hero. He saved me and made me better when my last specialist basically ignored me and my symptoms. And he is on board with the hookworm therapy and supporting me through the process.
I’m not sure but I think I’ve passed the phlegm stage. A couple days ago I felt some heaviness deep in my chest and had a mild cough which has since resolved. It’s supposed to happen between day 2 and 8. Today is day 5. I was expecting something... more noticeable.
I wonder if I will experience any symptoms of the worms. So far it’s been clear sailing.

1 comment:

  1. Very interesting and scary thanks for sharing :) Hope it helps a ton and keep us posted

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