Friday 2 December 2011

Week 12: So close but so far...

I finally found out what has being going on with all these hives I've been getting. I called Garin from wormtherapy and he explained that this skin reaction I've been having is a normal response to the worms and is usually seen after the 3rd or 4th inoculation. This is only my second inoculation, but maybe I'm more sensitised to the worms because I harboured parasites as a child? Perhaps.
The last entry I wrote, I mentioned that I had come off of the imuran. This made me so happy to finally get off this medication, especially because the risk of cancer is even higher when taking imuran combined with remicade, which I was. I felt it was better to come off imuran than remicade, because remicade I saw actual noticeable improvements in my health after infusions, whereas with imuran I never saw a single improvement in my symptoms, just in terms of my blood work. Anyways, last week I started flaring again.
One Saturday morning I woke up and I just felt drained. I didn't get any work done that day and just lounged around and napped and rested. The fatigue persisted and I thought, maybe I'm getting the flu or a cold because I also had a sore throat, and I was feeling pretty achy all over. By the end of the week, I started passing blood again. This really sucked! I was feeling SO GOOD!! The best I've felt in years!!
Such a blow to be back peddling. I don't regret coming off the imuran. I'm glad I'm off it but I was also hoping to stay in remission. It could be much worse of course. I still have very little to no pain, almost no gas and I'm managing to stay out of the washroom for most of the day. Maybe making one extra trip a day, that's it. The SCD diet is working at managing my symptoms so well! I just wish it would cure me.
Regardless, at least this will be an indication of when the worms start working. I'm finally at week 12! Let the therapeutic stage begin!